Caroline Simonpietri, PhD
Associate researcher, Laboratoire Centre Population et Développement (IRD), University of Paris-Descartes (France)
- Affiliation: University of Paris-Descartes
- Twitter: @SimonpietriCaro
Presentation
Expert-Patients, Technology and Addiction: What Articulation?
Abstract
In the United States at the beginning of the 20th century, the self-help movement was born by individuals contesting medical power “to free themselves from the medical and legal discourses which have objectified them for decades” (Lascoumes, 2007: 134). In France, following the rational of mutual assistance between peers, several associations were developed, such as “Alcoholics Anonymous” for example, created in 1934. However, in 2009, faced with the chronicity of disease, a new institutional concept emerged and disrupted what had existed informally for more than a century, the concept of “expert-patients”. Simultaneously, new information and communication technologies (NICT) have gradually emerged over the past thirty years in the management of chronic disease (Bourret, 2008; Cabé, 2005; Kleinebreil et al., 2009; Romeyer, 2008). Several forums, social networks and informative health sites are proliferating for the general public through the web 2.0 that support people with chronic pathologies (Akrich and Méadel, 2007). In light of these changes, we explore the different facets of peer support in relation to digital tools in the fight against gambling addiction.
Key words: patient-experts, Pair-aidance, NTIC, Innovations, Circulation des savoirs, Prévention
Biography
As a result of a triple disciplinary training in Neurosciences (M2R), Health Management/Marketing (MBA) and Socio-Anthropology (PhD), Caroline Simonpietri has been focused on chronicity and the digitalization of the health system since the early 2000s. Associate researcher in the CEPED laboratory (IRD) of the University of Paris-Descartes (Sorbonne-Paris-Cité) and independent consultant, she offers her services to associations, institutions and business in evaluating and disseminating their societal innovations, from their theoretical creation to reception by end-users (patients and healthcare professionals) in the form of “action research.”
